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Back in June, I attended the 100 Stories Celebration Event at Wrexham University. The event was an opportunity to learn about the project and hear from those that had been involved. Being a North Walian, it’s always great to hear about the work happening across communities in North Wales.
When I arrived at the university, the gallery was enshrined with story books and artwork, depicting individuals stories, thoughts and feelings. I felt really privileged to have the opportunity to experience this and to learn about peoples life experiences, some of which were extremely personal and emotive.
The word ‘inspiring’ can sometimes be overused – but this event, and the people involved in the project are truly inspiring. I can only commend the courage it must have taken to speak up and share such personal stories. But sharing different and honest narratives is so important if we really want to drive the change that is needed.
Led by Betsi Cadwaladr University Health Board and Wrexham University Civic Mission, the 100 Stories Project provides the opportunity to develop a detailed understanding of the complex systems young people have to navigate when transitioning from children’s to adult services. The aim was to collate100 stories and narratives from across the system to influence action through generating social proof and using coproduction to work together with all levels of the system over time, progressing behaviour change. This insight, gathered from understanding the experiences of professionals, young people, parents and carers, will enable decision makers to fully understand the challenges within this area and support ongoing action to undertake the changes that are needed through coproduction and the development of systems learning cycles.
The project has a focus on the voices we are not hearing, particularly voices of young people and young adults with a neurodevelopmental condition and/or a learning disability.
The population of children and young people with a disability is increasing in North Wales, this increases the numbers of children that will require transition in the future. The overall population of those with moderate or severe learning disabilities is also increasing in North Wales, which has an impact on the likelihood of continued support into adult services.
Increased waiting times for services are impacting on the age young people are assessed by neurodevelopmental services, leading to later diagnosis. This is affecting the development of transition processes in line with national guidance. The increased wait times also have a possible correlation to needs escalation, which can lead to the need for more intensive support or prolonged support into adulthood.
The 100 Stories Project design was co-created over 2 years, working with multiple partners and organisations to consider a safe and effective methodology that has a strong foundation of evidence and ethical safeguards and considerations.
The approach includes:
The greatest success of the project lies in the detail and content of the stories collated, which has enabled the isolation of recurring themes and the project’s ability to communicate challenges through an alternative medium outside of the traditional forms of reporting.
This has enabled the facilitation of meaningful action, building from the natural human response to listening to real human experience through the medium of storytelling.
The stories have gone beyond the original intention in understanding the experience of transition from multiple perspectives and have in fact highlighted the numerous interlinked complexities of the wider system that impacts on the outcomes of young people as they become adults. This is a significant factor, as it creates further opportunities for cross systems learning, which will support the ambitions of the project to create systems of coproduction to support onward learning cycles and strategies with cross system expertise.
If you’d like to know more about the 100 Stories Project and the impact it’s having, please email good.practice@audit.wales and we can make introductions with the project team.
Bethan Smith is the Programme Manager for the Good Practice Exchange Team. Bethan has worked for Audit Wales for over 12 years. Prior to this, Bethan worked in a number of roles within the Social Services department of a local authority in North Wales.